The reason for this site is very simple:
Our precious little Kelsey is embarking on another incredible journey and we want to be able to keep all the people that she has touched informed on her progress. I will also show how God has touched our lives and kept Himself in the forefront of our struggle
Kelsey has been diagnosed with Arnold Chiari Malformation Type I. This is somewhat of a rare condition, found predominantly in women between the ages of 18-35. The reason for the age group is because most patients do not begin experiencing symptoms until that age.
For Kelsey, however, her symptoms began almost from birth. The condition can be summed up by saying her brain is too large for her skull. Technically, the cerebral tonsils are herniated below the cranium and extending down into the spinal column. The resulting effect is excessive pressure is being placed on the brain stem / spinal cord leading to a multitude of neurological side effects. The most dangerous symptom and the one that has prompted the surgeries is sleep apnea and bradycardia events. Many people suffer from apnea, but the pressure place on Kelsey’s brain stem results in extended apnea events, lasting from 30 – 60 seconds and as frequently as 50 per night.
That is a very, very brief overview of the condition we are dealing with. As you read more about our journey, you will see terms and phrases commonly associated with this condition and you will understand more about it. I, as the moderator and father, do not understand much about it.
Thank you for stopping by and keeping up with Kelsey. I will be sure to tell her you came by, and if you leave a comment, I will be sure to read it to her.
God Bless,
Anson Kanoy
Anson:
Just wanted you to know that Ray and I are praying daily for you and your family.
Kitty Simpson
3-10-08
By: Kitty Simpson on March 10, 2008
at 6:57 pm
Hey there ya all! We are all praying fervently. We love you all and know that God’s will will prevail. Please Please give those little girls and yourselves big hugs and kisses from all of us. Chloe and Abby are missing them all! If there is anything that we can do from our end, don’t hesitate to call on us. We love ya all!
By: The Ellers on March 11, 2008
at 8:14 am
Anson, I love your posts. Especiallly about Callie, please tell her that all boys have cooties and they will jump on her if she gets too close! LOL ;o) I’m so happy that Kelsey made it through the surgery ok but I’m sorry to hear about the restraints.
( We will continue to pray and yes, God is AMAZING! Much love to you all, Jen
By: Jen on March 12, 2008
at 10:12 pm
Anson, I appreciate so much you keeping us posted! Evelyn
By: The Smiths on March 12, 2008
at 11:48 pm
Anson, I may not have a lot of time to be on the internet until Monday so I wanted to let you know that even if you don’t hear from me, you will all still be in my thoughts and prayers. I am blessed to be a witness to all that God is doing in your lives and to His glory. Give Kelsey a kiss for me and let Callie know how proud we all are of her as well. I know this has to be stressful for her as well. Am glad to read that she is adjusting well. May God continue to be Nicole’s and your strenght and fortress in this storm.
Love, Melva
By: Melva Terry on March 13, 2008
at 8:37 am
tell kelsey i siad hi
By: Peyton Martin on March 13, 2008
at 12:45 pm
Today’s pictures turned out pretty good, Anson. Keep them coming, please.
Love you all,
Nan & Pops
By: Nannie on March 13, 2008
at 5:53 pm
Hello Kanoy Family,
I met Nicole in Georgia while we lived there from 2004-2006. We home educate my children and we are also good friends with Tracey and Ed Pace. Tracey let me know about Kelsey and this website. I write to let you know that our family (now in Virginia, and I am originally from NY) are praying for all of you! We praise God for what He is doing in your lives and thank you for the encouragement you are to us, as you praise Him through this journey. Finally, I would like to leave you with a scripture: “The Lord also will be a refuge for the oppressed, a refuge in times of troubles. And they that know thy name will put their trust in thee: for thou, Lord, hast not forsaken them that seek Thee. Sing praises to the Lord, which dwelleth in Zion: declare among the people His doings.” Psalm 9:9-11
The Lord bless thee and keep thee!
The Phillips Family
By: Stephen and Anne Phillips on March 15, 2008
at 11:23 pm
Loved the purple eye shadow and the frog socks! Will you bring me a pair?! My church and my family are praying daily for you guys!! The blog is encouraging. Thanks for keeping us updated.
Callie, how is school going?
By: Coach Miriam on March 18, 2008
at 9:31 am
Hi Kanoy Family
I am writing to let you know that my family and church family is praying for your beautiful little girl (Kelsey). I know God work miracles. For the Lord God is your refuge in the times of troubles, and if you know his name and you put your trust in him, the Lord will not forsake those that seek him. I am telling you this because on Feb. 22, 2008, my little girl (Miracle Faith Mikell 3yrs. old) was diagnosed with Stage III Burkitts Lyphoma-Cancer. Through all of the 5 surgeries she had to have in a month of March, God have really worked a true miracle in our lives. So continue to hang in there. We all love you and are continuing to pray for Kelsey, mom and dad.
By: Angela Mikell on April 11, 2008
at 4:23 pm
How beautiful your faimly is! I came upon your site and was amazed at the journey you and Nicole have been thru with Kelsey. Isn’t God good “all” the time. I know he will continue to heal her and strengthen you both throughout this. Also good to hear you both have a very supportive church. My family is growing leaps and bounds, we are adding a new little one (boy) to our bunch in June. Take care,
Kristi
By: Kristi Tanner on April 18, 2008
at 10:42 am
Hey Anson,
what an amazing story. It is so great to see the pictures of you and your family. They are just beautiful. Tell Kelsey that she is just the prettiest angel I have ever seen. I will be praying for you and your family. Stay strong and take care,
Chaney
By: Chaney Clack on April 22, 2008
at 2:17 pm
Hello Kanoy family,
I stopped by to check up on Kelsey’s progress. I’m a part of Effingham Christian Homeschool Organization (ECHO) and a prayer request was shared with us before the surgery. I added her to our church prayer list (Woodlawn Bapt. Church in Garden City) and have had several requests for an update. God bless you and keep you!
By: Kathy Barefoot on April 28, 2008
at 7:45 pm
Anson,
Let me just start by saying hello. Your girls are all beautiful. I have been sitting here reading your story and just marvelling at what a wonderful Dad you have become. It is amazing what 13 years can do isn’t it? I am going to put Kelsey on our prayer list. I will definetly be keeping up with her journey. Tell her that an old friend said hello.
Serina Etheridge-Blackwell
By: Serina on June 6, 2008
at 7:05 pm
Thanks for the update. One of our church prayer warriors has been asking me without fail about Kelsey. I’m going to print out the latest and take it to church to share. A belated Happy Birthday Kelsey and many returns of the day!
By: Kathy Barefoot on August 4, 2008
at 12:29 pm
God bless you all. I attend Woodlawn Baptist Church, where Kathy Barefoot asked us to pray for Kelsey. It is an honor to lift her and the entire family to the throne of heaven. Please tell Kelsey that we are praying for her.
By: Ruth Seibert on August 13, 2008
at 12:32 am
Anson and Nicole,
Erica and I are thinking about you. Your faith and your strength is inspiring. Thank you for sharing your life wife us-
Alex and Erica
By: Alex Jarman on August 26, 2009
at 10:09 pm