Like this:

Hey gang,
I’ve waited long enough, have been asked too many time, and finally decided I would sit down tonight and update Kelsey’s site.  Primarily because tomorrow we leave for Iowa.

After our visit with the Chiari Institute, Dr. Bolognese told us if we wanted a second opinion there was only one other person in the US that was qualified, ie., seen enough cases, to make a educated diagnosis.  We thought this through and contacted Dr. Menezes in Iowa City.  I emailed him a report of Kelsey’s condition and sent her most recent MRI’s along with recent medical records.  Upon reviewing that, he suggested we come out to see him.  Not because he was overly nervous or concerned, but because the diagnosis will require further examination and explanation.  That’s where we stand today, about to board another plane to continue our quest of seeing this entire country one hospital at a time!

Since the last post, which was quite a while, things have been normal.  She’s had good days, she’s had not so good days, and an intermittent terribly day or two.  About 2 weeks ago Nicole called me around 10 am to say Kels had not awakened for the day and she was a little worried.  Kelsey is the second one up, of the children, so something had to be abnormal.  Nicole woke her, dressed her, placed her in the car and drove to town and Kelsey barely made a sound.  When I finally met up with them, Kelsey was a dish rag.  Her arms and legs were splayed about, almost lifeless to be brutally honest.  When I called her name, she was struggling to focus her eyes on me.  By the time we were seen by our doctor, it had all passed and she was coming back to normal.  This is virtually the same scene as back before Christmas when we called the ambulance to come get her.  By the time the EMT’s showed, it was over.  I said all that to say, life is the same here, nothing better-nothing worse.

I will be updating after we visit with Dr. Menezes to let you all know what we may be in store for next.  Thanks for the continued prayers and support.

A.

Advertisement