Good Morning All,

It has been quite some time since the last update, there has been little to write about.  Until today.  We are meeting with our cardiologist this morning to discuss some things that Nicole has found while some additional research.  She has been reading about a condition called dysatonium, excuse the spelling.  At this point, I cannot really tell you a lot about what the condition is, I am still unclear on the details.  All I know is that the heart pauses could be linked to this, not neccesarily the Chiari.  I am remaining very optimistic that once Kelsey’s 4-6 month healing period is behind us, her symptoms will clear and we can hopefully close this chapter.  We will know more in the days ahead, and I will do my best to update those of you visting this site.

As for the rest of the band, all is well.  Cambrie is growing and coming along very well.  She and I will sit in the floor each evening playing with her toys.  She can’t sit up from a laying position, but if you sit her up, she has great balance.  I had forgotten just how amazing it is to watch a baby learn new things!

Callie is doing well also.  She is preparing to move up to level 3 on her gymnastics team, and she is so very proud of herself, as am I.  We are about to break for the summer with her homeschooling, hopefully that will ease a little pressure on Nicole.

As for Nicole, she is researching Kelsey’s conditions more now than ever before.  Not a day goes by that she has not turned up some new information or made a new contact that shares the struggles that we are going through.  This is a further testiment to what a strong and tremedous mother she really is.

That’s about all for now, but I will be back later with a report from the doctor visit.

A.