Good Evening Everyone,

 It has been a few days since my last post and once again I apologize.  The girls came home on Wednesday the 26th, and since that time it has been pretty chaotic around here.

Kelsey is doing very well so far, considering where we have been.  She is trying to be a normal 2 year old, but we are having to limit her activity, doctors orders.  We were told that we have about 3 more weeks before the danger of the patch leaking is behind us.  That is great, but that is a lot easier said than done.  Most of you that know Kels personally know that she cannot really sit still for very long.   But, we are all making sacrifices to work toward a common goal.  Callie is not flipping-twirling-dancing around like she normally does, which helps.  I am not picking her up and throwing her around, as she likes.  Nicole is trying to play more games that involve cognitive thought rather than physical exertion.  

As for Nicole, she is still beyond exhausted.  It has been such a long road and it is finally catching up to her.  Thursday after they got home, Nicole started to feel more sick than she had the past couple days.  Her stomach was turning and she had a head cold.  That night, it really hit her hard.  We had a cardiologist appointment scheduled for Friday morning, but I canceled it because Nicole needed the rest. That has been rescheduled to next Friday or first cancellation, which ever comes first.  She (Nicole) needs a lot of rest right now, and I am not sure how to provide that to her.  The older girls are fine playing with me, but Cambrie only wants Nicole.  Cam still cannot sleep by herself.  She thinks if someone is not holding her, her world will end, or at least she cries like her world is ending.  Tracy, one of Nicole’s good friend, offered for us to bring Cambrie out, let her watch her while we did other things for a few hours.  She (Tracy) can handle a crying baby, so that would help break her of some a bad habit.  I am somewhere in the middle on this one.  While I do find it rather difficult to listen to my child scream and cry, begging for attention, I know that she only knows one form of communicating right now and she also knows the louder she cries the quicker she is picked up.  Tough call, very tough call.

Anyway, the plan for now is to continue as we are, watching Kels closely until we can decide on  the monitoring equipment we will be using.  We have the first of a series of cardiologist visits next Friday, followed by a second a third opinion in Atlanta and Jacksonville at a date yet to be set.  

Please continue to pray for rest and healing.  More so for the adults than the child of need!  Also pray for clarity as we speak to these doctors, so much information can be overwhelming.  As always, I will be updating as more things happen.

 In Christ,

A.